Share your story on accessible housing and adaptations

We would like to use people's real stories and experiences to support our upcoming campaigning work on accessible housing and adaptations for people with MND. 

Have you struggled to get the adaptations to your home that you need?

We are keen to hear what your experience has been, and potentially to share it as part of our campaigning work. This could include using your story or a quote on our website, or in our reports, leaflets, social media and/or national and local media. Unfortunately, we cannot guarantee that we will use your story but we will acknowledge all submissions. If we are able to use your story we will follow up with you and share how we will use your story or quotes to ensure you are happy with the content.

If you have difficulty completing this form, you can ask someone to complete this form on your behalf or support you to complete it. If you would prefer to discuss this by phone, please contact us on 020 7250 8447.

By submitting this form, you consent for us to contact you about your experience of housing adaptations. The details you provide will be held by the MND Association for campaigning purposes.

By selecting 'yes' to becoming a member of the Campaign Network, you consent to us contacting you via email on a regular basis with information about our campaigning, volunteering and financial appeals and events and how you can help.

You can withdraw your consent at any time, by contacting us on 020 7250 8447 or emailing Full details on how your data is collected and how we use your information can be found in our privacy policy.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262